eviemeg🍉

2 mins of unedited tourette’s (on a active tic day!) i don’t share my tics as much anymore so here’s some more tic awareness💕 #tourettessyndrome #tourettes #tourettesawareness #tics #fyp

friday 13th of september i had 10 hours in total of cluster tonic clonics, it was over 24 hours before i was responsive again and ended up in hospital a week with daily severe seizures and full body dystonia attacks❤️‍🩹what people don’t talk about is health trauma. today sprung up on me, ‘just’ a day, friday the 13th, but the last one left a mental scar. this video shows the seizures and dystonia yes, but what it doesn’t show is the doctor kneeling down infront of me telling me over and over again he’s bringing the psychiatry team to see me. it doesn’t show the neurologist telling me i shouldn’t be in hospital, i need more fresh air. it doesn’t show them completely disregarding my diagnosis of late stage lyme disease & encephalitis, and refusing to even talk about it or even say those words. it doesn’t show me coming round from a seizure coughing due to feeling a tube at the back of my throat. or the doctor telling me i’m not even having seizures. it doesn’t show the tears and anger on my mums face after being transported to another hospital to talk to a neurologist who was horrible to me. it doesn’t show me arguing with the doctor and saying i don’t need a phsyciatrist and begging him to listen. so so much saddness from that week that has stayed with me, and my mum for that matter. i’m not sure how it’s been 3 months it feels like yesterday 💔 just venting. bit nervous to share but want to use my voice #healthtrauma #gaslighting #medicaltrauma #medicalgaslighting #ptsd #seizures #encephalitis #autoimmunedisease #autoimmuneencephalitis #warrioe #lymedisease #awareness

merry christmas to those who celebrate!!🥰have the best time!😁🫶🏻✨#wheelchairdance #dance #polarexpress #christmas #wheelchairuser #lymedisease #autoimmunedisease #christmasdance #christmasoutfit

so i have a dystonic tremor now🙂 it comes in attacks, not constant. but it’s super sudden, no warning, so painful and upsetting😔 on the 14th of December i just randomly started shaking & jerking while my neck muscles were contracting. i thought it was a tic, we only realised what it was by the time i’d had 3 attacks. they’re so painful, especially in my neck which severely contracts and often my jaw & tongue too. i’ve had dystonia for 5 years now but never a tremor like this. i’m trying to film every attack to document them but i might have missed a couple. i’ve had 8 attacks in 10 days now, needing emergency meds every single time. it’s really upsetting me. i’m flaring so my mental state is different and other symptoms are bad too, i’ve noticed it’s mostly Lyme symptoms. always caught off guard when something new pops up😕 #dystonia #dystonictremor #dystoniawarrior #lymedisease #encephalitis #autoimmunedisease #dystoniaawareness #healthdiary #autoimmuneencephalitis

editing a youtube video i filmed 2 days ago and realised how much i’m masking these days😕i hope my days get better soon💜#fyp #relatable #masking #MentalHealth #encephalitis #braininflammation #foryou

Replying to @Katey thanks for that😎 #dystonia #dystoniawarrior #dystoniaawareness #autoimmunedisease #whatanoddthingtosay #encephalitis #fyp #foryou

as requested💓 #jellycat #fyp #jellycattour #jellycatcollection #foryou #bashfulbunny @Jellycat

joining the trend 💕 #fighter #braininflammation #lymedisease #bartonella #encephalitis #autoimmuneencephalitis #fyp #trend

asked my nail artist for gingerbread nails and she DELIVERED🤎 #nails #christmasnails #gingerbread #nailart #acrylicnails #tics #tourettes #fyp #christmas

happy friday🩷 staying positive despite this attack which is still on going. have a good day 💓🫶🏻 #dystonia #awareness #dystoniawarrior #autoimmunedisease #dystoniaawareness #grwm #fyp

cheers dad🥲 autoimmune diseases suck. had my first proper tic attack in months, (possibly like a year!!) dystonia attacks and dystonic tremors are back full swing. just being around infection can make me very symptomatic, even if i don’t get the cold myself. my immune system is shit😅 #awareness #fyp #autoimmunedisease #autoimmuneencephalitis #dystoniawarrior #ticattack #tics

i think even one day if i get to remission, my heart will never be like this again —>❤️ it’ll always be like this —> ❤️‍🩹🩹 (i’m okay just wanted to do the trend before it’s passed) #lymedisease #trend #autoimmunedisease #autoimmuneencephalitis #foryou

answering some questions about my tics!! will be replying to more on insta (eviemeg) 💛 #tics #tourettes #tourettessyndrome #foryou #PANS #encephalitis #autoimmuneencephalitis #ticsawareness #tourettesawareness #autoimmune

tics in the shop, a new decided to start while shopping, a high pitched noise which gets lots of attention, hence why i look so anxious lol🙈 i’ve had a tic similar to this before years ago but this feels a bit different. in Asda it was so loud, i did it right behind a couple and they both jumped and turned around. it’s hard to deal with tics in public so please be kind if you see someone with tics in public, it’s hard for us to go out the house sometimes💓 #tics #tourettessyndrome #tourettes #tics #PANS #ticsawareness #tourettesawareness

i normally wouldn’t say anything but due to the nature of my content and my health, i didn’t want anyone thinking i was in hospital again. i’m struggling internally atm but im not even really sure why. i feel weird. i’m okay tho, i just don’t like pretending to be happy for content, it’s draining. back soon 💜

Replying to @.br00tally.honest. good afternoon, this is how i’m starting my day but trying to keep in high spirits♥️ found this comment funny🤣 #dystonictremor #dystoniawarrior #lymedisease #encephalitis #autoimmunedisease #dystoniaawareness #healthdiary #foryou

a glee performance is a dance i can get behind🙈 haven’t seen anyone do a wheelchair version yet!🩷my 5th wheelchair dance🫶🏻 #glee #fyp #wheelchairdance #dance #trend #gleek #foryou #wheelchair

just #bartonella things🤣🦠 #fyp #lymedisease #bartonellavinsonii #foryou #rage #lymewarrior #awareness #bartonellarage #autoimmunedisease

excuse me?🐰 also the extreme white teeth are alarming #fyp #foryou #bunny #rabbit #lionheadbunny #bunmum #rabbitsoftiktok #lionheadrabbit #rabbitburrito

Replying to @user96219683054951 blows my mind🥴it’s so stupid. the maths doesn’t even work out🤣#lymedisease #latestagelymedisease #chroniclyme #chroniclymedisease #fyp #foryou